Useful information and resources for families

Here are some links to charities who provide advice and support on a range of conditions, disabilities and illnesses. 

It can be tough when a loved one moves into a care home. It can have a big impact on your life too.

If you have any questions, please ask your local Exemplar Health Care home who'll be happy to help. 

There are also lots of charities to support you.

Charities 

  • Asperger’s Syndrome Foundation: The Asperger’s Syndrome Foundation is committed to promoting awareness and understanding of Asperger’s Syndrome.

  • Brain and Spine Foundation: The Brain and Spine Foundation is a registered charity that provides support for people affected by neurological conditions. They run online support groups and carers events.

  • Carers Trust: The Carers Trust is a charity that supports carers. It works with a network of partner organisations to help carers with the challenges of their caring roles.

  • Carers UK: Carers UK provides support and advice for carers, including about your rights and entitlements. It has a telephone helpline and local carers’ groups.

  • Encephalitis Society: The Encephalitis Society is registered charity that works to raise awareness and support for people affected by encephalitis. It runs a connection scheme to put people in similar situations in touch with each other, as well as monthly virtual support networks.  

  • Epilepsy Action: Epilepsy Action is a charity that aims to improve the lives of everyone affected by epilepsy. It runs a Epilepsy Action Helpline, as well as forums, training and virtual support groups.

  • Headway: Headway is a UK-wide charity that works to improve life after brain injury by providing vital support and information services.

  • Huntington’s Disease Association: The Huntington’s Disease Association is a registered charity that aims to improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.

  • Mental Health Foundation: The Mental Health Foundation is a charity that provides information, carries out research, campaigns and works to improve services for anyone affected by mental health conditions, whatever their age and wherever they live.

  • Mind: Mind is the leading mental health charity in England and Wales. It works to create a better life for everyone with experience of mental distress. Its website has lots of information and advice, including links to online peer support and an information hub.

  • National Autistic Society: The National Autistic Society champions the rights and interests of all people with autism and aims to provide individuals with autism and their families with help, support and information on services.

  • Parkinson’s UK: Parkinson's UK is a Parkinson's research and support charity in the UK. Its aims are to improve the quality of life for people affected by Parkinson's and find a cure for the condition. It has a helpline, online forum, local advisors and local groups.

Support for carers 

  • Carers UK - Carers UK is the leading national charity for unpaid carers. They advocate for, champion, connect and support carers across the UK, so that no one has to care alone.

  • Carers UK’s Digital Resource for Carers - Carers UK and NHS England have teamed up to provide unpaid carers in England with advice, information and support.

  • Chill4us Carers - Chill4us Carers is a social network community for family carers. It's a peer support group offering carer resources.

  • TLAP Care and Support Jargon Buster - TLAP's jargon buster is a directory of Plain English definitions of commonly used words and phrases in health and social care.

  • The Samaritans - The Samaritans provide 24 hour emotional support to anybody experiencing distress, despair or suicidal feelings. You can also talk to someone face to face if needed.

  • Togetherall - Togetherall is an online mental health and wellbeing service offering self-help programmes, creative outlets and a community that cares.

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